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National Alliance of Provincial Health Research Organizations (NAPHRO) Fetal Alcohol Syndrome Disorders (FASD) Autism Spectrum Disorders (ASD) Strengthening opportunities for health research commercialization in Western Canada National Alliance of Provincial Health Research Organizations (NAPHRO) This alliance of provincial health research funding agencies was created in 2003 to promote increased dialogue, linkages and partnership activities. Alliance members meet two to three times a year to share information and identify potential opportunities for working collaboratively on common issues. Since January 2007, the alliance has been co-chaired by Ms. June Bold, CEO of the Saskatchewan Health Research Foundation, and Dr. Alain Beaudet, President and CEO of the Fonds de la recherche en santé du Quebec. Past Co-Chairs 2004-2006: Dr. Aubrey Tingle (President & CEO, Michael Smith Foundation for Health Research, BC) and Ms. Krista Connell (CEO, Nova Scotia Health Research Foundation) Examples of common interests NAPHRO members share
Anyone wishing to communicate with the provincial health research funding agencies should continue to deal directly with each agency. There is, however, some opportunity to share information with NAPHRO agencies at their meetings. To arrange such an opportunity, please contact one of the co-chairs. NAPHRO members are listed below, including links to their respective websites:
At the request of the BC Ministry of Children and Family Development, MSFHR contracted with the Canada Northwest FASD Partnership to support the partnership's efforts to create a proposal for FASD research networking. The consultation focused on networking to create and enhance links between investigators, policy-makers, care providers and consumers in BC, Alberta, Saskatchewan, Manitoba and Canada's three northern territories. MSFHR delivered the report to the seven jurisdictions’ Ministers in November 2003, at which time government officials were instructed by the Ministers to explore implementation options for the recommended networking strategies. The central recommendation of the report was to create a regional FASD research network, with a host organization in one of the participating jurisdictions designated to coordinate network activities. On October 18, 2004 the Ministry of Children and Family Development announced that the partnership has decided to implement this recommendation, and that an application from BC’s Provincial Health Services Authority (PHSA) was the successful applicant for the designation of host organization. Through the BC Research Institute for Children’s & Women’s Health, PHSA has recruited internationally-recognized FASD researcher Dr. Sterling Clarren, who will serve as the Scientific Director of the new Western/Northern FASD Research Network. BC Ministry of Children and Family Development news release on FASD research network Back to Top Autism Spectrum Disorders (ASD) During 2003/2004, in collaboration with the BC Ministry of Health Services, MSFHR assisted with data collection and analysis to provide a reference point for future planning on northwest regional collaboration to enhance capacity for research on autism's causes, diagnosis and treatment. The resulting inventory is designed as a tool for policy-makers, researchers, service providers and organizations funding health research. The funding and activity analyzed encompasses research across the country supported by major national/international granting agencies, as well as activity in Canada's west and north that is supported by various funding agencies and/or governments. MSFHR Inventory of Autism Research in Canada In March 2004, the inventory was presented to an invitational meeting of policy makers, researchers and health research funding agencies from BC, Alberta, Saskatchewan, Manitoba, NWT and the Yukon. The aim of the Vancouver meeting was to provide an opportunity for representatives of various stakeholder communities to share perspectives on Autism Spectrum Disorder (ASD) issues in their jurisdictions, and how their priorities and concerns might shape future collaborative ASD research networking initiatives across the region. The meeting brought together more than 60 stakeholders from across Western and Northern Canada, with the goal of identifying opportunities for these jurisdictions to join together in efforts to build capacity for evidence-based policy and service delivery. A series of presentations were made, covering three key areas:
Autism Conference Agenda Autism Conference Proceedings Back to Top Strengthening opportunities for health research commercialization in Western Canada May/June 2001 — MSFHR participated in a Western Canadian Task Force on Health and Economic Development, chaired by Dr. Henry Friesen, Chair of Genome Canada and commissioned by the late Hon. Ron Duhamel, then Secretary of State for Western Economic Development. The Task Force engaged stakeholders in exploring ways of strengthening health research and commercialization opportunities in Canada's four western provinces. Besides advocating for more commercialization of health research and the application of research benefits in the health system, participants envisaged a broader agenda: the opportunity to pursue innovation within the health system as a cornerstone of economic development. August 2001 — With continuing support from Western Economic Diversification Canada, the Canada West Health Innovation Council (CWHIC) was formed to move the agenda forward. Led by a steering committee chaired by Dr. Aubrey Tingle, President & CEO of the Michael Smith Foundation for Health Research, the Council began a strategic planning process to identify key areas of health research and health expertise within each province that could serve as a catalyst for economic development and innovation. The goal: to create inclusive networks linking expertise for critical mass and a Pan-Western advantage. March 2003 — Western Economic Diversification approved a second round of funding ($2 million) to develop business plans for up to five prototype networks headquartered in Western Canada. Back to Top |
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| Last updated April 25, 2007 | |
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