What gynecologic cancer patients want to know about gynecologic cancer research: Disseminating timely research evidence through recorded conversations between patients and research experts

Co-lead: 

  • Nicole Keay

Team members: 

  • Nicole Prestley
    Women's Health Research Institute
  • Lori Brotto
    Women's Health Research Institute
  • Helena Abreu do Valle
    UBC
  • David Huntsman
    UBC
  • Lien Hoang
    UBC
  • Jessica McAlpine
    UBC
  • Anna Tinker
    UBC
  • Siv Klausen
    Patient partner
  • Debra Walker
    Patient partner
  • Rose Au-Yeung
    Patient partner
  • Justine Greene
    General public
  • Samyak Sah
    SFU
  • Gina Ogilvie
    UBC
  • Laurie Smith
    UBC
  • Stephanie Lam
    UBC
  • Gavin Stuart
    UBC

Patients with gynecologic cancer have articulated a strong desire for accessible research evidence. We are proposing to work with patients to develop five short videos on gynecologic cancer covering topics in prevention, diagnosis, treatment and living well with, and beyond, gynecologic cancer. These videos will be ‘hosted’ by the patient partner, and will consist of recorded, structured conversations (taking place virtually using zoom) between a gynecologic cancer patient and a gynecologic research expert. Where necessary, additional information will be interspersed using powerpoint slides and infographics to improve clarity and maximize evidence sharing. By having our patient partners 'host' these conversations, it will ensure that content is relevant to patients. We hope that these videos will improve the lives of gynecologic cancer patients in BC by: 1) Making it easy for patients to access information on the research happening here in BC that is directly relevant to their cancer care and journey; 2) Increasing awareness of opportunities to participate in gynecologic cancer research in BC; and, 3) Providing easy access to the stories and experiences of other gynecologic cancer patients.