Patients’ experiences of engaging in health research: Partners in the dance
March 31, 2017
Speaker
Sheila Kerr & Kelly English, Arthritis Patient Advisory Board, Arthritis Research Canada
Objectives:
- Describe the development and roles of a patient advisory board within a health research organization
- Discuss opportunities and challenges in partnering with patients in research priority setting, data collection and KT
- Illustrate the process of peer-to-peer mentoring for patient partners in health research
Resources
- Presentation Slides (PDF)
- About Arthritis Patient Advisory Board of Arthritis Research Canada
- Plain language research summaries (written using a template created by Arthritis Patient Advisory Board)
- Arthritis Research Canada quarterly newsletters
- Reaching Out with Arthritis Research Public Forum 2011-2016 (videos)
- It IS About Us: Patient Engagement in Health Research (report)
Upcoming webinar
Dr. Terri-Lynn Fox - Director of Wellness programs, Black Tribe Dept of Health, Inc
Cheryl Koehn - President, Arthritis Consumer Experts
Date
July 22, 2022
Walking with the Arthritis community on the path forward towards Truth and Reconciliation
In 2021, Dr. Terri-Lynn Fox and Cheryl Koehn came together as Indigenous Scholar, settler/colonial and persons living with rheumatoid arthritis to walk together on a path forward towards Truth and Reconciliation. Speakers will discuss how an Indigenous-led initiative, the Arthritis Learning Circle, has developed into lead several community-driven research projects. The webinar will also touch on deliberate and meaningful design that upholds reciprocity, accountability, and transparency throughout different phases of research.
After this webinar, participants can:
- Describe how an Indigenous-led initiative formed on Turtle Island-Canada is leading community-driven action.
- Discuss approaches to uphold reciprocity, accountability, and transparency at each stage of community-driven action.
Date/Time:
Friday, July 22 at Noon to 1 pm (PT)
Post webinar FIRESIDE CHAT – Meet the researchers
KT Connects invites you to stick around after each webinar for a chance to explore your own goals in KT with our esteemed guest speakers. This post-webinar session is open to anyone who wants to gain insight to better incorporate KT into their research or who may be considering a career in KT. It is also an opportunity to connect with other attendees interested in KT. The fireside chat will happen right after the webinar ends.
Date/Time:
Friday, July 22 at 1 to 1:30 pm (PT)