Developing clinical decision tools and hosting educational events to disseminate an evidence-based guideline for the sustained use of patient-centered measurement data in mental health

This project builds on another study that resulted in the development of an evidence-based guideline for healthcare providers (HCPs) on the integration of patient-centred measurement (PCM) data to incorporate the voice of persons. Incorporating PCMs into routine practice is one way to attain patient-centred care. In this project, the guideline will be spread to decision makers and HCPs working in the Mental Health and Substance Use (MHSU), specifically community psychosocial rehabilitation and recovery services in British Columbia and across Canada. In collaboration with practice and patient partners, two activities will be completed. First, we will develop and share clinical decision tools for HCPs to routinely integrate PCM. To increase awareness about the guideline, educational webinars will be developed, offered, and evaluated. These activities facilitate the wider uptake and sustainability of PCMs at the point of care. Expected outcomes of this project include: (a) development of clinical decision tools and webinars specific to MHSU to augment the PCM guideline, (b) enhanced awareness by HCPs and decision-makers about the guideline, and (c) delivery of person-centred care for psychosocial rehabilitation.


Team members: Anthony Neptune (Mental Health and Substance Use); Zohreh Yaghoub Zadeh (Mental Health and Substance Use, and Fraser Health); Lynn Musto (Trinity Western University); Vidhi Thakkar (Trinity Western University)

 

Mobilizing falls prevention knowledge with patients and clinicians in British Columbia

Effective approaches to prevent falls exist, yet barriers to their uptake exist. These barriers include: 1) patient knowledge of best-practices for falls prevention; 2) geriatrician time and a geriatrician shortage in British Columbia (BC); and 3) access to Otago Exercise Program (OEP) training across BC. To mitigate some of these barriers, we propose a series of videos guided by patient, clinician and physiotherapist champions. The Falls Prevention Clinic team includes patient partners, geriatricians, and physiotherapist champions who deliver the OEP. A primary goal of this video series will be to: 1) increase awareness using accessible language of best practices for falls prevention; 2) increase referrals to physiotherapists for falls risk assessment from geriatricians; and 3) provide access to resources for physiotherapists who would like training in the delivery of the OEP. The intent of these videos is to prevent falls and thus promote healthy aging by: 1) facilitate improved patient understanding of how to prevent falls; 2) address the geriatricians capacity burden through increased physiotherapist referrals for falls risk assessment; and 3) foster translation of the OEP to physiotherapists across BC.


Team members: Tracy Dignum (UBC); Teresa Liu-Ambrose (UBC); Linda Li (UBC); Kenneth Madden (UBC); Naaz Parmar (UBC); Larry Dian (UBC); Catherine Chan (UBC); Alison Chan (UBC); Lillian Morishita (Retired); Cassandra Adjetey (UBC); Eleanor (“Jean”) Ko (Retired); Mohammed Esfahaad (Retired)

 

Beyond the Binary in BC: Taking a patient-oriented and trauma-informed approach to building partnerships and dialogue to incorporate gender equity into women’s health research

Dedicated women’s health research is a relatively recent milestone. Available guidance for including trans and intersex people in this work has not acknowledged the social, historical and political contexts that led to naming cisgender women (women whose gender aligns with their sex assigned at birth) in research, and tends to be focused either on clinical work (e.g. how to refer to patients and their anatomy) or on data collection (e.g. how to ask about sex and gender).

“Beyond the Binary” will include a survey to assess current gender-equity initiatives in BC, two educational workshops, and two knowledge exchange events to inform guidance for gender-equitable practice within BC’s women’s health research community. To co-create safe, trauma-informed, and patient-oriented guidance, trans and intersex people will be invited to participate in these activities and to participate on a Community Steering Committee. Through collaboration with people from trans, intersex, research, health, ethics, and academic communities, we aim to develop context-specific guidance, resources, and recommendations for researchers and health decision-makers to bridge this knowledge gap.


Team members: Beverley Pomeroy (Fraser Health); Laurel Evans (UBC); Caroline Sanders (University of Northern British Columbia); Ann Pederson (BC Women’s Hospital + Health Centre); Michelle Chan (UBC); Tamara Baldwin (UBC); Lindsay Carpenter (University of Northern British Columbia); Faith Jabs (UBC); Skye Barbic (UBC); Julia Santana Parrila (Women’s Health Research Institute); Nicole Prestley-Stuart (Women’s Health Research Institute); Lorraine Greaves (Centre of Excellence for Women’s Health); Lori Brotto (UBC); Wendy Robinson (BC Children’s Hospital Research Institute); Melissa Nelson (Women’s Health Research Institute); AJ Murray (BC Women’s Hospital + Health Centre)

The role of senior centres in promoting the health and wellbeing of older adults: Co-developing a research agenda with Vancouver senior centres

As our population ages and generational shifts occur, the health and social needs of older British Columbians are changing. Senior centres play an important role in providing health promotion, social services, and recreational activities that enhance the health and wellbeing of community-dwelling older adults. Despite the important roles senior centres can play in the lives of older adults, to date there has been limited research on senior centres and the impacts of their programs and services on older adults. The purpose of this project is to host four workshops for stakeholders from Vancouver senior centres (staff, board members, and senior centre members) to co-develop an agenda for future research. The workshops will provide an opportunity to learn more about stakeholders’ perspectives about the current challenges, opportunities, emerging trends, and roles for senior centres in supporting the health and wellbeing of older adults. Based on the workshops, a workshop report will be created as a well as a research agenda for future research on senior centres.


Team members: Anthony Kupferschmidt (West End Seniors’ Network); Leslie Remund (411 Seniors Centre Society); Douglas Dunn (South Granville Seniors Centre); Laura Kadowaki (Simon Fraser University)

How can health economic models better reflect patient and public values? Understanding stakeholder perspectives and research priorities through the Peer Models Network

Researchers build computer models to explore the potential costs and benefits of different ways of providing health care — and model results influence health services in BC. This project will bring together BC experts (‘health economic modelers’) and connect them with research users and members of patient and public organizations. First, modelers will meet with research users to understand current processes of model development, decision-making, patient and public involvement, and transparency (i.e. clear, culturally safe, accessible information) in modeling. Then, modelers, research users, and members of patient and public organizations will meet at two online engagement sessions. Sessions will highlight what health economic modeling is; how models are developed; why modeling involves making social and ethical decisions that affect patients and members of the public; what modeling processes in BC are like; how models are being used in policy-making; where patient and public input in modeling is most important; and the goals of transparency. Participants will be invited to discuss and record their research priorities and perspectives on appropriate processes, creating shareable knowledge and connections for future collaboration.


Team members: Ian Cromwell (Canadian Agency for Drugs and Technology in Health); Stephanie Harvard (UBC); Manik Saini (BC Ministry of Health); Jemal Mohamed (BC Ministry of Health); Leah Grantham (Independent Consultant); Amin Adibi (UBC); Eric Winsberg (University of South Florida); Nick Bansback (UBC); David Whitehurst (Simon Fraser University)

Co-development of an educational toolkit to integrate palliative approaches to care for workers in inner city settings

People who are vulnerable and marginalized such as those who have substance use disorders, mental illness, or are homeless are at high risk of death. Our research shows that they could benefit from palliative approaches to care but the inner city workers who most care for them like housing and harm reduction workers do not have much support and knowledge related to palliative approaches to care. We have worked for several years with a community-based action team to integrate palliative approaches to care into their work and have developed an educational toolkit prototype with them. In this Reach project, we propose to the funds to complete our user-centered design to ensure that toolkit is developed in ways that are relevant and useable for the intended audiences. Specifically, we will (a) turn the toolkit content into user friendly resources, videos and graphics, (b) engage community-based peer reviewers to provide feedback, and (c) develop and implement a dissemination plan for uptake. We anticipate with better prepared and supported inner city workers, people who are vulnerable and marginalized will have better outcomes at the end-of-life such as access to palliative care services when needed.


Team members: Jonathan Schmid (Victoria Hospice Society); Ashley Mollison (University of Victoria); Kara Whitlock (University of Waterloo); Piotr Burek (Vancouver Island Drug Checking Project); Robyn Kyle (Victoria Cool Aid Society); Annie Do (Victoria Hospice Society)

 

Civility matters: Co-creation of an online toolkit for long-term care home staff

In long-term care (LTC) homes, the number of staff working on a shift is essential to quality care provision; however, it is increasingly apparent that who is on shift is just as important. Quality care is difficult to achieve when staff do not routinely engage with one another in a positive, or civil, manner. Our research, conducted pre-pandemic, revealed the impact of uncivil workplace behaviours on care delivery and staff well-being, an impact that has only been exacerbated by COVID-19. A positive workplace culture requires the cooperation of front-line and leadership staff and access to professional development opportunities that help staff instill and contribute to a collaborative and respectful workplace. Comprised of researchers and union and industry partners, our project team will co-create an online toolkit to support staff to address workplace (in)civility in LTC and promote supportive and collaborative workplace relationships at their worksites.

Specific objectives include: 1) Raising awareness about the nature and impact of workplace incivility in LTC on staff well-being and care delivery; 2) Creating opportunities for staff to engage with practice-based scenarios and resources for addressing workplace (in)civility.


Team members: Saleema Dhalla (SafeCare BC); Jennifer Lyle (SafeCare BC); Leah Laing (UBC); Heather Cooke (UBC); Rhonda Croft (BC Nurses’ Union); Hanif Karim (BC Nurses’ Union); Lisa Kelly (Sienna Senior Living); Cina Oppel (BC Government & Service Employees’ Union); Megan Scott (BC Government & Service Employees’ Union); Georgina Hackett (Hospital Employees’ Union); Anne Bull (Hospital Employees’ Union)

 

Participatory Indigenous nursing knowledge translation project: Co-creating Indigenous wellness support networks by and for Indigenous healthcare professionals in interior British Columbia

The proposed Participatory Indigenous Nursing Knowledge Translation Project will provide opportunities for stakeholders from British Columbia’s health authorities, nursing educational institutes, professional nursing organizations and associations to participate in the integrated knowledge translation stakeholder’s forum to establish an Indigenous Health Professional’s (IHP) Network. The intent is to cocreate Indigenous wellness supports by and for Indigenous healthcare professionals to decolonize healthcare systems and structures. This work is in response to the Calls for Action on Truth and Reconciliation, and to respond to Interior Health and FNHA mandated strategy to address Indigenous workforce issues. A key outcome of the integrated knowledge translation activities will be the collaboration of community members, with multidisciplinary Indigenous health professionals coming together to address the growing inequities, racism, and discrimination. Through Indigenous health nursing leadership and guidance with Indigenous knowledge holders our team will co-create Indigenous wellness support systems, through policy development, and educational training in culturally informed ways through Intergenerational Indigenous mentorship.


Team members: Judy Sturm (Interior Health); Rose Mylnek (Thompson Rivers University); Christina (University of Victoria); Melba D’Souza (Thompson Rivers University); Colleen Seymour (Tk’emlups Knowledge Holder); Leslie Bryant (Interior Health); Tracy Mooney (Interior Health); Shirlie Delacherois (Interior Health); Shesley Callison-Hanna (Thompson Rivers University)

Raising awareness of conflict of interest in patient-oriented research

POR is an increasingly popular approach to research, involving meaningful partnerships with patients to improve the relevance and use of research. There is an increasing focus on how teams can best support partnerships, including fair compensation for patients partners and greater openness about research funding practices. This is particularly important when research is funded by private companies or donors, as COI can arise and may affect the ethical conduct or quality of the research.

A COI can happen when a research team member stands to gain status or financial advantages as a result of a research partnership and teams are faced with the need to find ways to address these. However, little is known about how to manage COI in POR. Our previous research has explored the research literature, as well as the perspectives of those engaged in POR. We found few examples of how COI can be managed and a need for practical resources and tools. In this planned research, we will work together to create a guidebook, including resources and tools, to help POR teams identify and manage COI. Designed to reflect needs of diverse audiences, we will share these widely to raise awareness, support best practices, and evaluate its usefulness.


Team members: Marc Bains (HeartLife); Stirling Bryan (BC Academic Health Science Network); Alison Hoens (UBC); Michelle Mujoomdar (Canadian Agency for Drugs and Technology); Trina Fyfe (University of Northern British Columbia); Iva Cheung (Freelance); Erin Michalak (UBC and BC SUPPORT Unit); Justin Otteson (BC SUPPORT Unit); Haydn Molcak (UBC); Daman Kandola (University of Northern British Columbia); Jennifer Brown (UBC); Nassim Adhami (University of Northern British Columbia); Shayna Dolan (University of Northern British Columbia)

Strengthening Cultural Identity: Supporting urban Indigenous youth-in-care to access culture through self-determined health and wellness in lək̓ʷəŋən territory

The Strengthening Cultural Identity project will connect urban Indigenous youth in care to language learning resources and culturally centered coming of age activities in lək̓ʷəŋən territory (Victoria, British Columbia). These elements were identified by youth participants during the 2018-2021 Coming of Age Project, as a way to strengthen their Indigenous identities. Building on the partnership between Surrounded by Cedar Child and Family Services (SCCFS) and the University of Victoria, we are proposing a knowledge sharing project that will support two of SCCFS’s youth groups, the Xe’Xe’tuls’thut (leadership) group and the Youth Advisory Council, in determining how they would like to integrate language and cultural teachings into their lives.

We will do this by:

  1. Translating knowledge sharing resources into lək̓ʷəŋən’anthun (Lewungen’athun) to honour the territory where we work, and nuučaan̓uɫ (Nuu chah nulth), to recognize the diversity of the urban Indigenous youth-in-care community.
  2. Working with the youth to facilitate access to language learning (e.g. the KS tools, language resources/teachers) and cultural activities in self-determined ways
  3. Celebrating what we have learned at a community feast.

Team members: Jennifer Chuckry (Surrounded by Cedar Child and Family Services); Andrea Mellor (University of Victoria)